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World’s worst disfigurement? Young woman with obscured face hopes for surgery
How do you view a person with a facial deformity? | PhillyVoice
Anthony Penington receives funding from the Jigsaw Foundation. He is chair of the scientific committee of the Australasian Foundation for Plastic Surgery. The recently released film Wonder is based on the true story of Auggie, a boy born with a severe facial deformity. The film picks up at the point where Auggie, having been home-schooled by his mother, attends a regular school for the first time and must negotiate the varied reactions — not just of his new peers, but of their parents and the other adults.
Treacher Collins syndrome TCS is a genetic disorder characterized by deformities of the ears, eyes, cheekbones, and chin. TCS is usually autosomal dominant. Treacher Collins syndrome is not curable. Symptoms in people with Treacher Collins syndrome vary. Some individuals are so mildly affected that they remain undiagnosed, while others have moderate to severe facial involvement and life-threatening airway compromise.
There is immense power in sharing stories and in relating to others with experiences similar to your own. Everyone deserves to feel like they belong. Reading stories that accurately portray individuals from underrepresented populations helps boost the voices of the marginalized.